Insulin for Life and more fridge space

Yesterday I finally posted off our extra insulin. I have kept 4 vials of Novorapid but the rest of the Novorapid, the Levemir and Protophane are now on the way to helping someone else.

As I showed in the photos during Diabetes Blog Week we don't need all the supplies that we used to since DD#4 F transitioned to glibenclamide (glyburide). Sending the supplies to Insulin for Life Australia has been on my to do list since January. I finally get to cross it off the list. And I get some space back in my fridge and pantry (the diabetes supply shelf is less crowded now.) I also sent off some pens, needles, lancets and lancing devices that we don't use.

I posted a while back about the need for insulin and other diabetes supplies both in developing countries and after disasters in first world countries. I'm glad that our surplus can help someone in need.

"Our" park open again - Fun Friday

Our local park opened again after the January floods about 2 weeks ago. We have been stopping there after school drop off or after school pick up nearly every day. It is so great that it is open again. The girls really enjoy the flying fox and spiders web. I like that they are having fun and being active.

So many parks are still closed including some of our favourites but I am very thankful that "our" park is open again.

Do you have a park that you call your own? What do you enjoy most about it?

Endo appointment

I spent a couple of hours last night trying to download the reading from DD#4's Optium Xceed meter. The Copilot works great to give an overall view of what the BGLs are doing. But the meter didn't what to talk to the PC and I had to reinstall thedriver software. I finally got some lovely printouts (graphs, pie charts, etc) to show the doctor.

Well I was expecting good things from today's appointment. I wasn't disappointed, thankfully. Hb A1C 5.3 yay:) I feel like I have passed a test but really all it is is the appropriate treatment for my daughters rare condition is working effectively. We have tweaked the glibenclamide (glyburide) dosages a little since last appointment to 2.75mg breakfast, 3.75mg lunch and 2.75mg dinner. The increased dose at lunch seems to cover lunch and afternoon tea better than the 3 equal doses we had previously being using.

It seems so weird to be thankful that F has a rare genetic disease one little Arginine peptide changed to a Histidine at the 201 codon but it has made the management of her Neonatal diabetes easier.

I also found out that DD#3 thought that her sister didn't have diabetes anymore. The new treatment certainly isn't a cure but is a miracle. Still praying for a cure for Type1 and the monogentic forms of the disease.

Fun Friday

I had a great time today listening to
Wicked. I loved the musical and I love the CD. Listening to it takes back me to the show.
This is the original (US) cast recording but the Aussie cast aren't going to make one.

What is your favourite musical?

Missing out on the fun

DH and DD's C, D and E went to the Planetarium on Saturday afternoon. I stayed home with F for nap time.
We booked ahead for the show after the disappointment of last try. The family ticket is usually for 2 Adults and 2 children but it was cheaper for our 1 Adult, 3 children family as well.

They all had a great time and saw Secret of the Cardboard Rocket. DH has been raving about and planning the next outing already. He keeping telling me useless interesting facts such as "while Mercury is a hot planet it's dark side is freezing"-knew that, "Venus spins opposite to the other planets" - had to look it up to post, already forgot it.

They also went to the Botanic Gardens and followed the Hide 'n' seek Children's trail. The girls thought it was also great fun.

So Saturday was a good day of family educational and active fun. Hopefully I will get to go next.

Edited actual space facts as I keep getting the names mixed up. Oops!

Fun Friday

I felt a bit blogged out after Diabetes Blog Week. I have decided to try a few theme days to help me get things going again.

So here we are on "Fun Friday".

I visited a blog recently and saw this great case that their daughter had been given.

http://myabetic.com/lovebug.php

I am seriously tempted to buy one. It is such a cute testing kit.

What I've learned - Diabetes Blog Week

Topic: What have you learned from other blogs - either this week or since finding the D-OC?  What has your experience of blogging the DBlog Week topics with other participants been like?  What has finding the D-OC done for you?  If you'd like, you can even look ahead and tell us what you think the future holds!

This week has has reminded me how many great blogs there are out there. I have visited a few this week I haven't been to for a while and been blown away by how well others express themselves. I have visited many others for the first time and and am happy to have found them.

Finding the DOC has been a mental life saver for me. When I have needed to know others are going through the same things the DOC has been there and I appreciate more than I can express. The same, same feeling that I get as I read is a comfort, as well as wishing that others didn't have to go through it.

I know my DD will grow into a strong confident women because I can see those that have gone before and succeeded. Both because and despite of Diabetes.