F was supposedly to be admitted last week to transition to the oral drugs but she had Hand, Foot and Mouth so they didn't want her in hospital. But in the last week I have spoken to Dr Greeley from the Kovler Diabetes Center and another family in Australia whose daughter has the same mutation (R201H). F's Dr hasn't treated anyone before so I'm trying to get as much information as possible from others. So the time has been productive anyway.
Dr Greeley says that he is unsure how long her transition make take as even though she is young she was undiagnosed for a number of months and they haven't had experience with that.
F is now due in hospital next Monday to try to transition off insulin. It's going to be an exciting but nervous time for us.
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