F has now had 9 months and 3 days since diagnosis and just under nine months before diagnosis. Each day is another of diabetes but also another day to thank God she is still with us.
Since she actually has neonatal diabetes she has had it since she was conceived. Insulin in a growth hormaone in the womb, which explain why she was only 2.6kg at birth. DDs 1, 2 and 3 ranged between 3.3 & 3.65kg.
I look forward to the day when she has been on oral medication longer than she was on insulin.
- our life with four beautiful daughters and how we deal with the challenges of one of them being a toddler with Neonatal Diabetes.
Monday, January 31, 2011
Saturday, January 29, 2011
Good pick for teacher.
I didn't know how things would go with D starting school but I am convinced that God is looking after this as well. Her teacher was a speech therapist before becoming a teacher. D has been seeing a speech therapist for over a year for her stutter. At least her teacher is aware and educated in the area. I'm still looking for a new clinic as Child health can't see D since starting school.
Turns out I wasn't as ready as I thought
I managed to get C & D off to school on the first day relatively well. Photos were taken. No tears were shed.
But the rest of the day wasn't so smooth. E wanted to buy ham after dropped off dad at the train station. I wasn't planning a shopping trip but off we went. That went fine. I just strapped them both in the tolley and they can't get into too much trouble. It actually was good to buy a few things to add to our flood-emptied fridge.
But the big problem came from my one planned activity to occupy E. I thought making cupcakes would be a hit. It turned out she was too busy with TV to help at any steps other than making the icing and getting them out of the oven. Making the icing went fine. But she touched the pan on the way out of the oven. Such a bad mum. I totally forgot that she hasn't had the don't touch drummed into her quite as much as the older girls who usually help. Ouch. So much crying. She eventually cried herself to sleep after demanding a bandaid and an icepack. I know either of those things would help a burn (both would make it worse probably) but she was inconsolable.
But the cupcakes were yummy.
But the rest of the day wasn't so smooth. E wanted to buy ham after dropped off dad at the train station. I wasn't planning a shopping trip but off we went. That went fine. I just strapped them both in the tolley and they can't get into too much trouble. It actually was good to buy a few things to add to our flood-emptied fridge.
But the big problem came from my one planned activity to occupy E. I thought making cupcakes would be a hit. It turned out she was too busy with TV to help at any steps other than making the icing and getting them out of the oven. Making the icing went fine. But she touched the pan on the way out of the oven. Such a bad mum. I totally forgot that she hasn't had the don't touch drummed into her quite as much as the older girls who usually help. Ouch. So much crying. She eventually cried herself to sleep after demanding a bandaid and an icepack. I know either of those things would help a burn (both would make it worse probably) but she was inconsolable.
But the cupcakes were yummy.
Saturday, January 22, 2011
Nearly ready.
I'm nearly ready for Monday.
I'm nearly ready to send a second daughter off to school.
I'm nearly ready to make more school labels.
I'm nearly ready to try to occupy my 2 youngest daughters without their big sisters around.
I'm nearly ready to run another load of washing.
I'm nearly ready to get some sleep.
Nearly ready.
I'm nearly ready to send a second daughter off to school.
I'm nearly ready to make more school labels.
I'm nearly ready to try to occupy my 2 youngest daughters without their big sisters around.
I'm nearly ready to run another load of washing.
I'm nearly ready to get some sleep.
Nearly ready.
Tuesday, January 18, 2011
Hello again.
Well don't really know where to begin. So much has happened. We have had a lovely holiday at Caloundra (Sunshine Coast).
We came back to a very wet Brisbane, that only got wetter. There has been major flooding to our suburb and allow we weren't directly affected it has been a stressful time watching and waiting to see where the water would stop.
As we were away for more than I week we need to use tablets for F. These were crushed and added to food, usually apple puree which she loves. Thankfully we were given more tablets than we actually needed. This meant we actually had enough medication to cover the time we couldn't get to the hospital because of flooding. Even if we could have got there the fact her medication needs to kept cold would have been had with no electricity for 4 days.
F was also sick in the last week, just a cold, but her BGLs were only slightly higher. Yay.
We came back to a very wet Brisbane, that only got wetter. There has been major flooding to our suburb and allow we weren't directly affected it has been a stressful time watching and waiting to see where the water would stop.
As we were away for more than I week we need to use tablets for F. These were crushed and added to food, usually apple puree which she loves. Thankfully we were given more tablets than we actually needed. This meant we actually had enough medication to cover the time we couldn't get to the hospital because of flooding. Even if we could have got there the fact her medication needs to kept cold would have been had with no electricity for 4 days.
F was also sick in the last week, just a cold, but her BGLs were only slightly higher. Yay.
Labels:
Flooding,
Holidays,
KCNJ11,
new treatment,
Sulfonylureas
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